Resources
Here you will find a variety of resources to help you in your role as a Direct Volunteer.
This book is essential to understanding the role of a direct volunteer and what you may experience when supporting someone at end of life. We ask you to read this book prior to your Volunteer Training Workshop. We have some in our Lending Library that you are welcome to borrow or you can purchase it on google play or amazon. Click here
TED Talk Links
More to dying than meets the eye
Frontline documentary with Atul Gawande (1 hr)
You Tube Video: Empathy( 4mins)
YouTube Video: A story about Care (15 mins)
You Tube Video: Atul Gawande on Being Mortal (4 mins)
You Tube Video: Nancy Bern: The Space Between Joy and Grief (13 mins):
You Tube Video: The Grieving Process: Coping with Death (4 mins)
Ted Talk: Brene Brown: Vulnerability (20 mins)
TED Talk: Dr. Naheed Dosani :Homeless and palliation( 16 mins)
TED Talk: Kathy Hull: Stories from ahome for terminally ill children( 15 mins)
TED Talk: Kelly Third : Healthy Dying ( 12:33 mins)
https://www.youtube.com/watch?v=xnmNySjwk68
Websites
In an emergency or urgent situation, if you are unable to express your wishes, a MOST will help ensure your health care treatment aligns with your wishes
Canadian Virtual Hospice: Online resources(excellent information); Quality palliative care helps you honour your culture, spirituality and traditions. At LivingMyCulture.ca, people from various cultures share their stories and wisdom about living with serious illness, end of life and grief to support others
http://livingmyculture.ca/culture/
Advanced Care Planning: My Voice
https://www.health.gov.bc.ca/library/publications/year/2013/MyVoice-AdvanceCarePlanningGuide.pdf
CBC Live Stream: What happens in the final stages of life? Palliative care physician Dr. Louise Coulombe takes your questions on death and dying.
thenational/videos/10155128134287686/
Life and Death Matters
https://www.lifeanddeathmatters.ca/
https://www.islandhealth.ca/learn-about-health/medical-assistance-dying/medical-assistance-dying
Lovely thoughts on grieving from an older gentleman.
This is a hilarious Video. Click below to open link: Coffin Club
How to Help a Grieving fiend: Refuge in Grief
refugeingrief.com/helper-overview/
Manitoba Palliation Handbook- great information on bereavement and Grief.
Wall of Celebration:
https://www.linkedin.com/pulse/power-small-wins-celebrating-your-nonprofits-dones-beth-kanter
Great interview with the founder of Zen Hospice Project - Frank Ostaseski - "a Buddhist teacher, international lecturer and a leading voice in end-of-life care". Well worth the one hour listening
https://samharris.org/podcasts/the-lessons-of-death/
Boundaries Article:
https://www.nhpco.org/sites/default/files/public/newsline/2011/Oct11_NL.pdf
Kelly Third:
Having volunteered in hospice care, crisis management and medical advocacy, both locally and abroad, Kelly Third has built her career upon a foundation of exploring the human experience. Kelly has a profound interest in the various cultural and social impacts on how people die – identifying barriers to healthy dying and well supported natural death. Kelly is currently working as a Palliative Nurse at St. Paul’s Hospital and finishing her Masters in Public Health. Having recently completed an international internship with the Kenyan Hospice and Palliative Care Association, Kelly is keen to continue her research on this emerging public health issue.
https://ca.linkedin.com/in/kelly-third https://twitter.com/KellyThird
Medical Assistance in Dying
More Websites for MAiD
http://www.chpca.net/media/540325/chpca-maid-booklet-eng-12page-final-web.pdf (providers/vols)
https://www.viha.ca/NR/rdonlyres/F759AEE8-E652-4CCF-8467-7122647DA6A0/0/maidpamphlet.pdf (patients/families)
http://irpp.org/research-studies/interpreting-canadas-medical-assistance-in-dying-maid-legislation/ (March 2018 interpreting MAiD legislation)
www.viha.ca/maid (general information on website)
Movies & Videos
“Wit” (2001) Emma Thompson: a professor reassess life when she finds out she has terminal ovarian cancer
“The Bucket List” (2007) Jack Nicholson, Morgan Freeman: Two terminally ill men that meet as patients in a hospital
Extremis (2016) Netflix a documentary on realities of end of life care
“The Leisure Seeker”( 2018) Helen Mirran and Donald Sutherland. Netflix. It’s s about a end of life journey of a husband and wife.
End game(2018) Netflix Rob Epstein and Jeffery Friedman documentary highlight the compassionate work done by those who help terminally ill patients cope with dying.
Us and Them( 2018) While filmed around downtown Victoria BC, US & THEM, produced by Krista Loughton and Jennifer Abbott (The Corporation) could take place in any Canadian.
US & THEM: Eye-Opening Documentary on Homelessness | The ... https://www.homelesshub.ca/resource/us-them-eye-opening-documentary-homelessness
Books
Bearing the unbearable (2017)
Author: Joanne Cacciatore
The Power of Kindness: The unexpected benefits of leading a compassionate life (2006)
Author: Piero Ferrucci (Amazon.ca)
The Lonely Patient
Author: Michael Stein, MD.
It's good for developing the "positive quality" of Empathy in regards of the experience of illness.( In the hospice library
Permission to Mourn
Tom Zuba (Hospice Library)
Mourning has Broken
Author: Erin Davis
Poems & Songs
Poem) Keeping Busy. Author: Tom Zuba
( Song) Making Friends with Gone (wrote by Shari Ulrich after the death of her mother’s Death)
(Poem) A Fixer
( Song) Making Friends with Gone (wrote by Shari Ulrich after the death of her mother’s
Death) https://www.youtube.com/watch?v=ubSyPH-K6Ag
Author: Rachel Naomi Remen Book: In The Service of Live
Articles
As new grief models have come out, it seems that this whole idea of reaching the last stage, or of closure, is a myth altogether, because our grief lives as long as our love'
finding-peace-with-your-ghosts-advice-from-a-funeral-director/
Companioning Vs Treatment
http://www.griefwords.com/index.cgi?action=page&page=articles%2Fbeyond.html&site_id=5
The episode linked to is about mothers losing children to crime. An interesting perspective we don't hear from quite as much as other perspectives on loss.
Serious Illness Conversation Guide
https://www.talkaboutwhatmatters.org/documents/Providers/PSJH-Serious-Illness-Conversation-Guide.pdf